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3:15
Hopedale embraces 6-year-old girl with rare disease
2023年5月30日
CBS News
Nick Giovanni
1:20
Subtle symptom that revealed 'healthy' little girl had DEMENTIA and just years to live
2 个月之前
Mail Online
LUKE ANDREWS SENIOR HEALTH REPORT…
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FAQ part 1 #battendisease #specialneeds #momof3 | Special Needs
已浏览 2.2万 次
8 个月之前
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Tern Therapeutics on LinkedIn: #battendisease #cln2 #genetherapy
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•• Absence Seizures... - CLN1 Batten Disease, Hope for a Cure
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1:05
Life for the moment & all that jazz…… #battendisease #awareness #lifelimitingdiagnosis #raredisease #olliesarmybattlingagainstbattens #olliesarmy #ameliasarmy #moments #memories #love #life #thankful #cure | Ollie's Army Battling Against Battens
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Haircut day! 💇🏻♀️ #momlife #medicalmom #dayinmylife #battendisease #specialneeds | Special Needs
已浏览 3.3万 次
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🔸International Batten... - Batten Disease Family Association
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I wish I’d known this trick for my first board and batten wall! Grab any type of playing cards and use them to level out your board and batten pieces. Luckily my kids leave Pokémon cards lying around everywhere, but any will do 😂 Then just caulk and fill the gap as normal. If you skip the step, you’ll get a horrible ridge 😝 Save this for later! Board and batten, diy tricks, bathroom makeover #boardandbatten | Hana - DIY, Design, Crafting
已浏览 6474 次
8 个月之前
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0:07
DONATE OR BECOME A SPONSOR TO HELP CURE AND STOP THE PROGRESSION OF BATTEN DISEASE Click Here to Learn More https://curebatten.company.site/products/Become-A-Sponsor-c161815864 | CureBatten
已浏览 398 次
5 个月之前
Facebook
CureBatten
Washington couple devastated as sons, two and six, diagnosed with rare and fatal condition
2023年8月10日
meaww.com
0:06
We are thrilled to announce that the dedicated members of the McKay High School Volleyball Team will be generously volunteering their time and effort to support the 5th Annual Run for the Rare. | Haleys Heroes Foundation
已浏览 21 次
6 个月之前
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1:56
Isla's Faith | Nederland community rallies behind 8-year-old girl battling rare genetic condition
2021年11月28日
12newsnow.com
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