Home - The Ehlers Danlos Society
Join individual and families with EDS and HSD, and healthcare professionals, for up to three days of learning, collaboration, and networking. What is EDS? The E hlers- D anlos s yndromes (EDS) are a group of 13 heritable connective tissue disorders. The conditions are caused by genetic changes that affect connective tissue.
What is EDS? - The Ehlers Danlos Society
The Ehlers-Danlos syndromes (EDS) are a group of 13 heritable connective tissue disorders. The conditions are caused by genetic changes that affect connective tissue. Each type of EDS has its own set of features with distinct diagnostic criteria.
Home - Ehlers-Danlos Syndrome Research Foundation
The EDSRF is a medical research foundation that strives to improve the care of people with Ehlers-Danlos Syndrome (EDS), Hypermobility Spectrum Disorders (HSD) and related disorders in two ways: 1) by advancing innovative research on treatment modalities, efficacy, and delivery, and 2) educating healthcare providers across disciplines on the ...
Ehlers-Danlos Society - National Organization for Rare Disorders
The Ehlers-Danlos Society is a global organization dedicated to advancing and accelerating research and education in Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD). We support the development of effective and equitable EDS and HSD therapies and work collaboratively to improve the lives of individuals affected by EDS ...
The Marfan Foundation | Know the Signs | Fight for Victory
4 天之前 · The Marfan Foundation is a nonprofit organization that saves and improves lives while creating a community for all individuals with genetic aortic and vascular conditions, including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes.
Hypermobile EDS and hypermobility spectrum disorders
Hypermobile Ehlers-Danlos syndrome (hEDS), which used to be known as the hypermobility type or type 3, is thought to be the most common genetic connective tissue disorder. There is no up-to-date research to tell us exactly how frequently it occurs.
Ehlers-Danlos Syndrome: Symptoms, Causes & Treatment - Cleveland Clinic
Ehlers-Danlos syndrome (EDS) is a genetic condition that affects your body’s ability to produce collagen that supports your connective tissue. It can make your skin, joints and other tissue weaker and more flexible than they should be.
The Road to 2026: New Criteria for the Diagnosis of Ehlers Danlos Syndrome
The Road to 2026 is an initiative led by the Ehlers-Danlos Society to update the classification, diagnosis, and treatment pathways for Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD).
Frequently asked questions about EDS and HSD - The Ehlers-Danlos …
How do I get diagnosed with hypermobile Ehlers-Danlos syndrome (hEDS) or hypermobility spectrum disorder (HSD) as an adult? GPs are able to diagnose hEDS and HSD in adults, they can use the GP toolkit to do this, as it has a diagnostic criteria for hEDS with a …
What is EDS? - The Ehlers-Danlos Support UK
The Ehlers-Danlos syndromes (EDS) are a group of thirteen individual genetic conditions, all of which affect the body’s connective tissue. The Ehlers-Danlos Support UK is the only UK charity to support anybody touched by the Ehlers-Danlos syndromes