A Derbyshire family are facing an agonising wait to find out whether treatment for a rare genetic disease will still be ...

Picture: Callum Mackay. Ex-players from Inverness City and Clachnacuddin have raised at least £7500 at a charity football match at Canal Park on Sunday in aid of Sophie’s Story for Sophie Mason, who ...

Batten disease is a rare genetic disorder affecting 3 in 100,000 babies in the U.S., causing neurodegeneration, seizures, blindness, and early death, with an average life expectancy of 10-12 years.

Ollie, 14, and Amelia Carroll, 11, are among 36 children in the UK receiving treatment for the heartbreaking neurodegenerative Batten disease, also known as CLN2. NHS England must decide before ...

Parents of children with a rare neurodegenerative disease say they are in disbelief they could within months lose access to the only approved treatment that slows the condition's progress. CLN2 Batten ...

Two years ago, Beatrice Cieslik was diagnosed with CLN2 type Batten disease - a rare degenerative condition which causes seizures, blindness, dementia, and difficulty with mobility and speech.

This infographic details the presentation, progression, and treatment of neuronal ceroid lipofuscinosis Type 2 (CLN2 disease), a progressive neurodegenerative disease in which a genetic mutation ...

While some are going with mid-priced madness, Dan Batten believes it is the year of the $190k cheapie. He reveals his team and the latest rookie intel – including a point of difference play.