A life-saving medicine for children with Batten disease, a rare and fatal genetic disorder, is set to be pulled from the market because of unresolved pricing negotiations. Otherwise called CLN2 ...

36,279 people played the daily Crossword recently. Can you solve it faster than others?36,279 people played the daily Crossword recently. Can you solve it faster than others? Social Security Is ...

CLN2 Batten disease is an incurable genetic disorder that causes rapid decline in a child's ability to walk, talk and see. Phoebe, from Coventry, said daughter Flory's doses of Brineura ...

Two years ago, Beatrice Cieslik was diagnosed with CLN2 type Batten disease - a rare degenerative condition which causes seizures, blindness, dementia, and difficulty with mobility and speech.

NPR's Up First is the news you need to start your day. The three biggest stories of the day, with reporting and analysis from NPR News — in 10 minutes. Available weekdays at 6:30 a.m. ET, with ...

What is Batten disease? Doctor and family share insights on rare condition A local family is battling a rare disease diagnosis.

Based in New York City, Folkenflik serves as NPR's media correspondent. A five-time winner of the Arthur Rowse Award for Press Criticism from the National Press Club, Folkenflik has received ...

Kennedy says the CDC has sent vaccines and treatments to Texas, but his emphasis on vitamin A as a treatment for measles worries infectious disease doctors. NPR health correspondent Maria Godoy is ...