A life-saving medicine for children with Batten disease, a rare and fatal genetic disorder, is set to be pulled from the market because of unresolved pricing negotiations. Otherwise called CLN2 ...

36,279 people played the daily Crossword recently. Can you solve it faster than others?36,279 people played the daily Crossword recently. Can you solve it faster than others? Social Security Is ...

CLN2 Batten disease is an incurable genetic disorder that causes rapid decline in a child's ability to walk, talk and see. Phoebe, from Coventry, said daughter Flory's doses of Brineura ...

What is Batten disease? Doctor and family share insights on rare condition A local family is battling a rare disease diagnosis.

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Two years ago, Beatrice Cieslik was diagnosed with CLN2 type Batten disease - a rare degenerative condition which causes seizures, blindness, dementia, and difficulty with mobility and speech.

Kennedy says the CDC has sent vaccines and treatments to Texas, but his emphasis on vitamin A as a treatment for measles worries infectious disease doctors. NPR health correspondent Maria Godoy is ...

October 3, 2024 • NPR revises article after publication, with more lessons to be learned ...