Carol Schober-Flores, BSN, RN, is a Mohs Surgical Nurse and Epidermolysis Bullosa Nurse Specialist, University Hospital, Denver, CO. Topical ointments can be applied directly over the Mepitel ...
Causes: Butterfly disease refers to a group of rare, inherited diseases that cause the skin to be very fragile and to blister easily. There are around 30 subtypes of butterfly disease, and these are ...
Research into new bandaging aims to ease the agony experienced by those living with genetic skin condition Epidermolysis Bullosa (EB), commonly referred to as 'butterfly skin'. Scientists at ...
The updated release reads: BPGbio Receives FDA Rare Pediatric Disease Designation for its Investigational Treatment for Epidermolysis Bullosa This marks the company’s second Rare Pediatric ...
its investigational treatment for epidermolysis bullosa (EB). This designation coincides with EB Awareness Week, observed annually from October 25-31, highlighting the urgent need for innovative ...
It’s estimated that about half a million people around the world are affected by a rare skin disease called epidermolysis bullosa (EB), better known as ‘butterfly skin’, that causes skin to ...