Kay Henderson from Australia has been suffering from a connective tissue condition identified as VAD. During her last moments ...

Marking Marfan Awareness month, OT heard from the Marfan Trust about the ocular manifestations of the rare condition ...

Some people with Marfan syndrome have distinctive physical characteristics such as long arms, legs, and fingers; a tall, thin body frame; a curved spine; a protruding or sunken chest; and flexible ...

As a teenager, she grew “very tall and quite lanky ... in the February because it’s Marfan syndrome awareness month… I try to post relatable things for people with Marfans and teach people ...