Nature5 年
Effectiveness of ACE inhibition in patients with Marfan's syndrome on β-blockade
The standard treatment for the connective tissue disorder Marfan's syndrome (MFS) is β-blockade, aimed at reducing aortic wall stress. Angiotensin II type 1 and 2 receptors (AT 1 and AT 2 ...
来自MSN1 个月
Mum doctors called ‘lanky’ shares journey with rare condition causing long limbs and ...
Along with everyone in her family, Zoe also has Ehlers-Danlos syndrome – a condition which causes flexible joints and stretchy and fragile skin, which, combined with Marfan syndrome, means she ...
Wales Online1 个月
Mum with rare long limbs and hollow face condition talks being called 'freak', suicide ...
In addition to Marfan syndrome, Zoe, from Aberdare, lives with Ehlers-Danlos syndrome, which brings its own challenges such as flexible joints and delicate skin, making walking a struggle for her.
Daily Post Wales1 个月
Welsh mum bullied and told 'she was a freak' used filler to 'look normal'
Along with everyone in her family, Zoe also has Ehlers-Danlos syndrome – a condition which causes flexible joints and stretchy and fragile skin, which, combined with Marfan syndrome, means she ...