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1 天
Newsmaker 2024: School Board clerk shines light on rare disease that claimed her husband
Stephanie Kern lost her husband to PSP, a disease so rare that only 5 out of every 100,000 people get it. She shares her ...
Daily Express US on MSN
21 小时
Doctor warns symptoms of 'rare' cancer becoming more common
Dr Ahmed said it was once 'very rare' to get the specific type of cancer - but he's seeing more of his patients diagnosed ...
20 小时
Eton Pharmaceuticals Advances Its Commitment to Rare Disease with the Acquisition of Galzin®
Adds an additional commercial and strategic rare disease product to Eton’s portfolioGalzin is FDA-approved for the treatment ...
8 天
How One Woman’s Journey with a Rare Disease Motivated Her to Advocate for Herself and Others
Managing the unpredictable symptoms of indolent systemic mastocytosis prompted a search for answers and community.
1 天
on MSN
Lack of understanding hinders rare diseases treatment: CDFD
Hyderabad: India is home to an estimated 72 million people affected by rare diseases, said scientists at the Centre for DNA ...
20 小时
on MSN
What is 'rabbit fever', the rare disease up by 56% in the US? Signs and symptoms explained
Tularemia, a rare infectious disease, has seen over a 50% rise in the US recently, affecting children, older men, and ...
5 天
Crypto Holiday Miracle: $MIRA Raises Millions For Rare Disease
A heartwarming and unexpected story has captured the spirit of the holiday season as a memecoin moons to support medical ...
3 天
on MSN
Cases of rare ‘rabbit fever’ disease rose by more than 50 percent in the U.S. in recent ...
Cases of tularemia — a rare and sometimes fatal infectious disease that is also known commonly as “rabbit fever” — have risen ...
USA Today
11 天
4 ways to embrace life after a primary biliary cholangitis diagnosis
But a PBC diagnosis doesn’t define who you are. It’s a new chapter that, with the right tools and support, can lead to a ...
1 天
NBA legend Isiah Thomas reveals he suffers from rare muscle disease
Isiah Thomas reveals Bell’s palsy diagnosis during a heartfelt interview with Mark Jackson. Learn about his journey.
pulmonologyadvisor
16 小时
Phaware Founder Devotes His Life to PH Advocacy After Losing His Son to the Disease
Steve Van Wormer has published nearly 500 podcasts about pulmonary hypertension (PH) — more than perhaps anyone working in rare diseases.
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