Eight-year-old Amelia Carroll, of Poynton, Cheshire, has Batten disease ... which is already used to slow down the disease, directly into the eye. Ms Carroll said if it could save her daughter's ...

She suffered from a rare condition, where she had been battling a degenerative brain disorder called the Batten Disease CLN6. What is this rare condition and how many people does it affect?

The daughter of producer Gordon Gray and Kristen succumbed in her battle against the rare degenerative brain disorder Batten ...