Otherwise called CLN2, Batten disease causes devastating symptoms, including seizures, loss of mobility, blindness, and worsening dementia, with a life expectancy of around 10 to 12 years.

Two years ago, Beatrice Cieslik was diagnosed with CLN2 type Batten disease - a rare degenerative ... which slows the onset of deterioration and disability.

CLN2 Batten disease, external is an incurable genetic disorder that causes rapid decline in a child's ability to walk, talk and see. Phoebe, from Coventry, said daughter Flory's doses of Brineura ...